governance & annual report
Journey has a small, friendly Board of Trustees who are responsible for setting the charity’s vision and strategy.
Our trustees meet bi-monthly. Trustees bring lived experience of learning disability and/or professional expertise to help strengthen the charity’s work.
Founded by parent-carers, our Trustees include Journey parent-carers who share their experience of learning disability services and of their caring roles.
Barbara Simpson, Chair of Journey Enterprises.
Most people with this disease die in childhood or adolescence, but, amazingly, our sons did not and are now thought to be the oldest people in the world living with this syndrome.
I became involved with Journey in 2012 when our younger son started attending its services which were based then at minsteracres. At the time Journey was looking for Trustees and I thought it was the least I could do to offer my services, especially as I have such a long experience of living with disability and a long-term and successful career in education leadership.
Our son no longer uses Journey because as his disease developed his needs could no longer be met. However I am happy to still do all I can to help develop the service for other disabled people who can benefit from its much needed, high quality provision.